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Discussing choices – Discussão de escolhas
Yesterday, a debate was started in Facebook achondroplasia group. It was about the hypothesis of treating achondroplasia with a new potential therapy using a new compound (BMN-111), similar to a...
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The chosen ones
I´m not a religious person. I´ve no faith in any religion. But I have faith in what we can achieve with our capacities, determination and will. A friend sent me this story a couple of months ago, but...
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Countryside children´s day
Yesterday, the 1st June, it was children´s day celebration. At least in Portugal! Without material gifts, we celebrated the day together, doing several things with Clara and her brother and they could...
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The first day after
And one day went through! Since thursday, I stayed with Clara at the hospital during all day and night. But last night (the first after surgeries) and tonight, my husband wanted to stay with Clara at...
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Creating art!
“A little chicken in a picnic with her chicks”- acrylic on canvas, by Afonso and Clara (2014) “Instead of seeing cartoons, let´s paint” – I said! Afonso loved the idea and he had right away a theme...
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Prevention of intracranial hematomas
A child with achondroplasia has, among other body characteristics, a large and heavy head and disproportional short extremities (arms and legs), increasing the difficulty to control gait. For that, the...
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Day dreaming by Joan Pahisa
Joan is an amazing young man. He has a great smile, always inspiring others, very well-educated and with a genial energy for sports. He is totally engaging. I meet him last October during the...
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